Official advice about Ehlers-Danlos syndromes and hypermobility spectrum disorder labelled ‘incredibly damaging’

Official advice about Ehlers-Danlos syndromes and hypermobility spectrum disorder labelled ‘incredibly damaging’

Patients fear new guidance could see life-sustaining treatments withdrawn.

Patients often live with chronic and debilitating musculoskeletal pain and gastroenterological problems. They also commonly have Postural Orthostatic Tachycardia Syndrome (POTS), dysautonomia issues … [+8485 chars]
Official advice about Ehlers-Danlos syndromes and hypermobility spectrum disorder labelled ‘incredibly damaging’ - FHMnews