Q&A: Families shouldn’t have to coordinate Sweden’s rare disease care

Q&A: Families shouldn’t have to coordinate Sweden’s rare disease care

A Q&A with Zozan Sewger Kvist, CEO of rare disease competence center Ågrenska, on stalled reform, uneven access to care in Europe and the limits of regulation.

Zozan Sewger Kvist: For 25 years the families have been telling us the same thing: the system doesnt connect. Zozan Sewger Kvist, CEO, Ågrenska The breakdown is most evident in health care, especia… [+1766 chars]

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Q&A: Families shouldn’t have to coordinate Sweden’s rare disease care - FHMnews